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Category Life with Julia Jane Date January 14th, 2018

365 Project: Week Two

“every day might not be good, but there is something good in every day”

It's been a challenging week and I thought, for a second, that I would skip the project. That life was a little too complicated to share. But, then I thought, that the point of writing a 365 story, is just to tell the truth. It doesn't have to be shiny, glossy or perfect all the time, because life isn't always pretty. So here we go, welcome to week two: the good, the bad, & the messy. 

Day 1: It's almost time for the big red bow to come off the front door. But I'm not quite ready yet. 

Day 2: My nephew hides a pickle on the tree every year. I found it! :)

Day 3: We stopped by CHOP for some routine blood work and sat in the sunny dining area drinking coffee. Little did we know we would be back later in the week, reeling, when we found out Lucy would need more chemotherapy. 

Day 4: We got bad news on Wednesday. Lucy has a recurrence of tumors in both eyes and would need intra-arterial chemotherapy. I sought solace in the beautiful Christmas window at my mom's house. 

Day 5: Here's Lucy the Warrior, the night before her first treatment. We were all busy being scared and Lucy was busy playing peek-a-boo behind the table. (Her eye is marked for treatment and dosage). 

Day 6: We wait. The rain fell hard and fast all day in Philadelphia. Lucy was in treatment and we waited. I stared out the window and counted colorful umbrellas. Anything to try to pass the time and keep my mind occupied. 

Day 7: We had to stay in a hotel room near the hospital. Lucy woke up in a great mood and it was business as usual for her. We smiled with relief as she crawled around the hotel bed and stopped to eat her toes.

We will need to go to Philadelphia every 20 days for Lucy's treatment. If this is the first you are hearing about Lucy's retinoblastoma journey, and you want to read more, you can follow along on facebook and instagram with #lucythewarrior 

See you all next week.

xo,

Julia

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